So this 'Blogging' is something new for me.
I am not sure of the rules of blogging or just what I am supposed to write but I guess I will figure it out along the way.
I am not sure how regularly I will get to contribute but I will aim for once every couple of weeks if I can, so I can keep all who are interested, up to date with what is going on here at Nevus Support.
I wonder how many of you noticed our new website?
We did get a couple of emails and messages from people who did notice, thank you.
There is still some work and fine tuning to be done on it but at least the framework is up. If you pick up any editing errors please send us an email so we can fix it. Tired eyes don't always pick up everything!
I want to thank Alan, who has spent countless hours (and many late nights) around his work, family and community commitments to put it all together for us.
I would like to share with you all what is happening in New Zealand and Southern Asia in regards to patient advocacy groups for CMN but that will be another post I think. Suffice to say some very exciting things are happening for these regions and Nevus Support will be there to help them in any way we can.